EPILEPSYDiscussion
Coming off your meds


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SpeculationFeb 26, 10:56am
I've been giving the go ahead to start reducing my meds, slowly over the next 6 months. It's a decision I've been looking for, for more than 20 years. I'm wondering if anyone has been given the go ahead and what should I be aware of?
I'll add that my neuro and I agreed that should I have a seizure I will go back to where I was pre reduction...I'm also a sleep epileptic..


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WasChabadFeb 26, 6:47pm
When is the last time you had a seizure?

4466785Mar 4, 11:33am
I have PTSD from the military. PTSD is an on-going seizure. But it can be totally set off by a noise. Then, I have a catatonic seizure which makes me psychotic and dangerous. "I AM NOT OK" without my PAXIL or LAMICTAL (seizure Disorder meds) for PTSD. I loose my cognitive psyschology and recluse into my lost dizzy world of insane hatred and maddness and false accusuations against God. I become vindictive and have illusions that the whole world is after me. My dreams come straight out of hell and when I waken at 3 AM. I am still in HELL. On my meds I attend church, live in a real house and actually have true friends. So I suppose the trade off is up to you??? But I would fight Saten himself for my LAMICTAL. Thank Jesus and my VA Neuro for this medicine. PS: I have some 2 Mgs of Valium because SOMETIMES the little child inside of me just gets scared. Let me see. Jack Daniels and JAIL. OR 2 Mgs of valium and wake up in my bed with a quiet head??? Come off my meds - ONLY AFTER THE WAR...
The Winter Bear


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SpeculationMar 6, 12:59pm
I'm hitting one month now, stepping down through my meds with no seizures or auras...as of the 18th of March I will be stepping down another 50mg's...


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BytMiHrdMar 7, 9:06am
What meds are you on Speculation?


Coming off your meds

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